Managing a child’s complicated and complex disorder requires keeping up with health information like records, histories, treatments and providers. Children with autism spectrum disorder (ASD) often receive clinical care from multiple providers at different facilities. Finding a way to organize and streamline your child’s health information is a powerful tool to ensure he receives the most thorough care.
Unexpected events, like a doctor leaving a practice, a family move or a change in insurance coverage, can be especially difficult for families with children who need specialized care. Keeping medical information up to date and easily accessible helps you coordinate the best care without gaps for your child.
Organizing your child’s medical information will help you:
This will vary somewhat depending on your child, but it’s a great start to have:
There’s no right way to organize this information. Choose a method that’s comfortable for you and that you’re likely to stick with. Some techniques we’ve seen parents use successfully include:
Once you’ve established a system, create a dedicated time in your schedule to keeping it up to date. Regularly set aside a few minutes to file new paperwork or jot down questions you’d like to ask at your next appointment. Keeping your child’s information up to date is the only way to make the system useful and your family prepared for an unexpected event.
Get started on building a care notebook by visiting the American Academy of Pediatrics.
We recognize that every child is unique and that the content of this article may not work for everyone. This content is general information and is not specific medical advice. We hope these tips will serve as a jumping-off point for finding the best approach to helping a child with autism. Always consult with a doctor or healthcare provider if you have any questions or concerns about the health of a child. In case of an urgent concern or emergency, call 911 or go to the nearest emergency department right away. Some physicians and affiliated healthcare professionals on the Children’s Healthcare of Atlanta team are independent providers and are not our employees.