We want to know how genetic risk factors of autism spectrum disorder (ASD) may be different in African-American families.

We want to know if there are genetic differences that may be unique to African-American families with autism and figure out how behavioral and environmental factors may contribute to delays in diagnosis and access to care.

Who can participate?

You may be eligible if your child:

  • Is between the ages of 3 and 21 and has an autism diagnosis.
  • Is African-American or black.
  • Has no known genetic disorder (other than 16p and 15q mutations).
  • Has never participated in a genetics study on autism.

What is involved?

You will be asked to complete questionnaires and interviews regarding your child’s medical history, behavior, social skills and communication skills. Your child will undergo some behavior and cognitive (intelligence) testing.

A blood sample will be taken from your child, both biological parents and any sibling older than 3. This blood sample will be used to examine genetic factors that might be unique to African-American families with autism.

What is the time commitment to participate?

The entire study will last about eight hours, which will occur over a two- or three-day visit, whichever is most convenient for your family.

What are the benefits of participating?

Leading clinicians and psychologists will discuss what they observed during each assessment with your child.

A $50 gift card will be provided for each blood sample taken as our way of thanking you and your family for participating.

Sign up now

Email us or call 404-785-7600 and say you’re interested in the African-American Genetics Study.